The mom of a nine-year-old boy with a extreme and uncommon type of epilepsy who was informed Brexit would finish the provision of a life-changing hashish medication that saved her son’s life has been given a six-month reprieve.
Hannah Deacon mentioned she was massively grateful after being given the lifeline by the Dutch authorities, which has sanctioned continued provide of the medicines regardless of a Brexit ban on fulfilling prescriptions from the UK.
She obtained a letter on Thursday from the Division of Well being to tell her that the federal government within the Netherlands, the place the medication was created, had “confirmed that they’ll enable continued provide of Bedrocan oil in opposition to UK prescriptions for current sufferers till 1 July 2021”.
“I cried once I learn it. I sat and cried. I used to be informed on-line and I used to be fairly stunned to be trustworthy. I’ve spent the final two weeks terrified that Alfie’s seizures will recur due to the truth that we couldn’t get any extra Bedrolite [Bedrocan]. I didn’t really feel that the Division of Well being took it critically sufficient to maintain that medication provide line protected so I used to be very offended about that, and really upset,” she mentioned.
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